Organizations and resources I have found useful and supportive.
Advance Care Planning (Ontario) (Link)
The website begins with an explanation of what ACP is and then guides you through the ACP process. Along the way it will introduce and explain the concepts of informed consent, mental capacity and substitute decision-making. Download or ask for your free booklet to be sent in the mail.
Advance Care Planning Kit with Dying with Dignity (Link)
Helpful videos and prompts that invites you to think about and express your wishes for health care and treatment at the end of life. It is intended to provoke thinking, conversation, and planning, and to encourage communication among you, your loved ones, and your health care providers. Download in link.
Substitute Decision Maker (PDF)
This information is intended to support you to understand the role and responsibilities of the Substitute Decision Maker (SDM). Under Ontario Law, a doctor must get consent from the patient or their SDM(s) for any health care decisions, consent does not come from a piece of paper, it must come from a person so being prepared for this role is essential.
21 Days to Die by Linda Hochstetler (Book)
For most people with advancing diseases, there are signs that death will be soon. Diseases have many trajectories, but at a certain stage, the ceasing of life becomes certain, with a predictable sequence. At 21 days, there are usually no more treatment options with any real promise of quality of life. Death is a mystery, and we don’t want to take all the mystery away. However, there are steps we each can take to be fully, effectively present in the process, including navigating how EOL care works in Canada. This book is published in the hope that all Canadians will come to recognize these signs. Together we can share this information and be ready to welcome death when the time is right with peace of mind and no regrets.
Natural Burial Association (Website)
The natural burial movement began in the 1990’s and has gained momentum as more people appreciate that their connection and responsibility to the earth does not need to stop at death. Buried in a biodegradable casket or shroud, the body returns carbon and other minerals to the earth. Natural burial grounds bear no resemblance to conventional cemeteries. Rather than manicured lawns with rows of tombstones, imagine a meadow or woodland, which is restored and protected in its natural ecosystem.
Meal Train (Website)
Meal Train is rooted in the idea that a meal is a symbolic gesture of one person’s willingness to help another. The meal is a vehicle that allows the giving party the opportunity to show they care, that they hope to reduce a burden, and they will be there for the receiving party in the future. This outreach is a true interpersonal connection and is one that helps foster inter-dependence, dialogue, and compassion.
Aly Bird’s “Grief Ally” (Book)
Grief Ally by Aly Bird is the answer we’re all looking for when someone dies and we’re left asking “What do I do?” and “How do I help?” Fantastic resource to learn how to hold space for those you love and are experiencing loss.
Greg Barnsdale’s “Do Not Ignore Your Mortality” (Book)
Only about half the adult population of Canada and the U.S. have a current and valid will. The fallout is immeasurable, wide and deep. The statistics are not improving much either. Some people don’t know where to start, while others have family members who refuse to discuss it. Greg’s well-rounded experience will help you better understand the important end of life issues, and inspire you to get your affairs in order.
The Legacy Expo (Collective + Events)
The Legacy Collective supports and uplifts those who guide others through life’s final transition. We understand the depth of your commitment. You help others navigate the profound journey of mortality, grief, and remembrance each day with grace and presence.
Indigenous Perspectives – Palliative Care (Website)
Many First Nations people want the opportunity to die in the communities where they have lived all of their lives; however people in First Nations communities have limited access to culturally relevant and formalized palliative care programs. Providing equitable access to health services for all Canadians is a compelling social obligation that includes developing accessible palliative care programs for First Nations people. Provided by Red River College Polytechnic
The Death Deck (Game)
Have Fun With Some Taboo Talk. Play the new party game that lets you explore a topic we’re all obsessed with but often afraid to discuss.
Hospice Toronto (Website)
Since 1988, Hospice Toronto has served nearly 12,000 clients. By providing and advancing compassionate care and leadership in the volunteer-based home hospice community, Hospice Toronto has become a recognized leader in providing high-quality hospice care and support for people and their loved ones through all phases of their life-threatening illness, at no charge. We support Adding Life to Days through our In Home, Bereavement and Children’s Support Programs; Expressive Arts Therapy; Young Carers Program; and Advocacy & Consultation.
The Eirene Guide to End of Life Planning (PDF)
Download this resource as a helpful checklist to help guide you through end of life planning. From eirenecremations.com
Canadian Atlas of Palliative Care: Ontario Edition (Website)
The Ontario Edition of the Canadian Atlas of Palliative Care is the first-of-its kind resource to consolidate data from both provincial and regional levels across key domains such as policy, services, and education. Developed by Pallium Canada with support from the Division of Palliative Care at McMaster University, the Atlas highlights both the strengths of Ontario’s palliative care system and areas where critical action is needed.